Pop's Run Benefit August 23 , 2009. A fundraiser will be sponsored by the Nassau Wings Motorcycle Club, as part of their annual “POP’S RUN” charity event on Long Island NY. The proceeds will be donated to Boston Medical Center’s amyloidosis research efforts. For more information: 866-404-7539 or see www.popsrun.org
Frank Citrone Research Fund
February 28, 2009. A dinner-dance and auction was held at Moseley's on the Charles in Dedham MA to raise money for research on amyloidosis and on Waldenstrom's macroglobulinemia, in honor of Frank Citrone.
10.07.08 A report on AL-Base, the Amyloid Light Chain Database, has been accepted for publication in Amyloid: Journal of Protein Folding Disorders. AL-Base contains molecular information (both nucleotide and amino acid sequences) on more than 400 amyloid light chain proteins.
"July 2007: The Institute of Medicine of the National Academies of Science has published an update of their analysis of the health risks of Agent Orange that has reclassified AL amyloidosis as one of the diseases that may be associated with Agent Orange exposure, based upon "limited or suggestive evidence". This may make it easier for veterans with AL amyloidosis who were exposed to Agent Orange to receive compensation."